A special thank you
to all of Matthew's
physical therapists,
occupational therapists,
speech & feeding
therapists, teachers,
doctors who take excellent
care of him and to
everyone who has helped
him to learn and grow
giving him the space that
he needs as well as the
help to learn all the
skills he has...*smile*
Thank you.

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It's so simple...a simple somersault and yet for many kids with Agenesis of the Corpus Callosum it is such a challenge and doesn't come easily.

It doesn't stop there either. There are many things which don't come easily to babies and children with ACC such as learning to reach for toys, lifting their heads up while lying on their tummies, learning to roll over from back to tummy and tummy to back, learning to sit up, learning to move out of a sitting position, learning to eat table foods, learning to feed themselves, learning to crawl, learning to bear weight on their feet, learning to pull to a stand, learning to balance, learning to climb, learning to walk, learning to talk, learning to jump...learning period doesn't come easily and is a struggle for many children who are missing their corpus callosum. It is the corpus callosum which sends the messages, without our even having to think about it, and helps us to coordinate our bodies to use the two sides together. But, with that struggle comes a deep sense of appreciation for each and every small and wonderful accomplishment they gain.

Now, to throw a curve into the picture....there are actually some children with ACC who don't struggle with these activities at all or maybe only just a little bit. Then there are those children/adults who are functioning 'normally' in every way and don't even have any idea that they are missing their corpus callosum.

The thing to keep in mind though is that learning comes at different times for each child and not to compare your child with any other children or any other children with ACC. As a mommy of a 19 year old boy with ACC, I realize that this is easier said than done. They are on their own timetable for learning and all we can do is to help them the very best we know how and have patience with ourselves and our children...*smile*


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