Travis Research Institute
Warren S. Brown and his Research Team have been studying agenesis of the corpus callosum since 1992.

ACC Research Study
Dr. Elliott Sherr at UCSF University of California, SanFranciso is conducting a study of agenesis or dysgenesis of the corpus callosum. Information on how to enroll in this study can be found on the web site above.

California Institute of Technology (Caltech)
The Corpus Callosum Program at Caltech is focused on brain structure, social cognition and emotional responsiveness in individuals with agenesis of the corpus callosum.

Current Research Programs
This is a list of current research studies regarding ACC.

ACC Research Report
This report is written by Gary Schilmoeller and Kathy Schilmoeller (co-founders of the ACC Network) and titled: "Minding the Gap: A Large Scale Survey of Agenesis of the Corpus Callosum and Other Callosal Anomalies"

Agenesis of the corpus callosum: genetic, developmental and functional aspects of connectivity
Review by: Lynn K. Paul, Warren S. Brown, Ralph Adolphs, J. Michael Tyszka, Linda J. Richards, Pratik Mukherjee and Elliott H. Sherr

ACC Network & ACC-Listserv E-Mail Support Group
Information on how to receive written information in the mail about ACC as well as how to join the ACC-Listserv group.

National Organization of Disorders of the Corpus Callosum (NODCC)
The National Organization of Disorders of the Corpus Callosum is a non-profit corporation established in 2002 by professionals, parents, and individuals with agenesis of the corpus callosum (ACC) and other callosal conditions, their families, and professionals. Explore the ACC Conference Handouts for a variety of informative information. You will need Adobe Acrobat Reader to view the handouts.

ACCAwareness Support Message Boards
This message board was created by Lynnea, an adult who has ACC. She is the founder of ACCA which stands for ACCAwareness. Check out her support group for ACC and join in on the topics or create a new topic. Lynnea has set the support message boards up for ACC Parents and ACC Adults.

ACC Community Message Boards
Register for free and browse the many forums pertaining to agenesis of the corpus callosum including a General Discussion about ACC forum, Parents of Children with ACC forum, Individuals with ACC forum and many other forums.

Agenesis of the Corpus Callosum Yahoo Message Board
You can register for free and join in on the many topics and discussions about ACC.

Agenesis of the Corpus Callosum ACCKids
This group offers a web page with stories of ACC children as well as a Yahoo e-mail support group called ACCKids.

CORPAL
A Support Group for the families and carers of those with Agenesis of the Corpus Callosum and Aicardi Syndrome based in the United Kingdom.

Italian ACC Forum
Un meraviglioso ACC italiano Support Forum creato da parte della mamma di un ragazzo con ACC.
A wonderful Italian ACC Support Forum created by the mother of a child with ACC.

Septo-Optic Dysplasia (SOD) and Optic Nerve Hypoplasia (ONH)
A web site which includes wonderful information about SOD/ONH and support.

Chromosome Deletion Outreach, Inc.

The Official Patient's Sourcebook on Agenesis of the Corpus Callosum
personal note: I have not yet read this book.

The Human Corpus Callosum--Info & Pictures

What Does The Corpus Callosum Look Like?
This is a very graphic picture of the corpus callosum in detail.

The Corpus Callosum Divided Into Sections
This site breaks down the human corpus callosum into four sections.
The formation of the corpus callosum occurs approximately between the 8th and 20th embryonic weeks in an anterior (front) to posterior (back) direction with the genu forming first, followed by the body, the splenium and finally the rostrum.

Atlas Images of the Corpus Callosum
This site labels the corpus callosum and surrounding structures.

Agenesis of the Corpus Callosum--Unraveling the mystery
An article in RT Image (February 14, 2005, vol. 18, no. 7) written by Susan L. Koubek. Susan is a second-year radiology student.

TheFetus.net
Information about Agenesis of the corpus callosum written by Gianluigi Pilu, MD including a list of frequent and occasional syndromes seen with ACC as well as diagrams and MRI pictures.

Corpus Callosum, Agenesis
This site is authored by Manohar Aribandi, M.D., Academic Chief of Neuroradiology at Geisinger Medical Center and provides detailed information.

Corpus Callosum, Agenesis: Multimedia
This site includes MRI pictures of the brain with a normal corpus callosum, with agenesis corpus callosum and various other corpus callosum conditions. It is also authored by Manohar Aribandi, M.D., Academic Chief of Neuroradiology at Geisinger Medical Center.

Where is the Optic Nerve?
This site shows a graphic view of the right hemisphere middle view of the human brain and labels the optic nerve and where it is in relation to the corpus callosum.

History and Anatomy of the Corpus Callosum
Information about the corpus callosum including a diagram and MRI.

Standard Split Brain Experiment
This site deals with an experiment done on people who have had their corpus callosum severed to control severe seizures.

The Cerebral Hemispheres

Specialized Functions of the Cerebral Cortex
Color coded diagram of the brain noting the function of each section

Specialization of the Two Hemispheres
This site describes the different functions of the left and right sides
of the brain in detail

Information Highways: How the Brain and Body Communicate

Detailed View of the Human Brain

An Overview of the Brain
This site is authored by AboutKidsHealth in collaboration with The Hospital for Sick Children (SickKids) in Toronto, Ontario Canada. It offers interactive information about the brain and it's functions. They also have a JustForKids section called Brain Wave All About the Brain.

MRI of the Corpus Callosum

The Whole Brain Atlas
See MRI pictures of any particular section of the brain.

Considerations For Educators Of Students With ACC
This page is written by Mr. McCallum a teacher who has worked with an ACC child in his classroom. He offers detailed and valuable information. The web page version is no longer available. If you would like to receive a copy of this document by Mr. McCallum please E-Mail me. He wrote the following line which I feel is the best possible way to begin to educate any child...

"Finding a student?s learning style is key for the educating of that child."

Finding "the keys to Matthew"
An article written in 1998 about ACC based upon an interview with Gary and Kathy Schilmoeller and their son, Matthew, who has ACC. Gary and Kathy Schilmoeller are the founders of The ACC Network.

Educational Suggestions For Children With ACC: A Beginning
Written by Kathy Schilmoeller. You will need Adobe Acrobat Reader in order to view this page.

Teaching Resources
A list of websites and teaching tools/methods made up of input from parents who have a child with Agenesis of the Corpus Callosum (ACC) and adults who have ACC.

Music and Learning

So often music reaches and touches us in so many positive and delightful ways. For many of our kids with agenesis of the corpus callosum (ACC) music is a way in to help a child learn a new skill, respond, imitate, make new sounds, and the list goes on. This is true for my own child who has ACC. Since he was a little baby he has always responded and learned more easily if music was involved, if a silly song was sung to teach him a body part. I love how music is able to reach in and bring out the most beautiful possibilities in a baby, a child and a grown adult. Music touches our spirit and moves us deeply.

MUSIC THERAPY

Listen and Learn Music

Explore Listen and Learn Music and meet the board certified music therapist behind it all, Rachel Rambach. You will find full versions of songs to sing with your child and she even offers the chance to create Custom Listen & Learn CDs with 10 of your favorite songs. She will even personalize Hello, Birthday and Good-bye songs for your child, student or class. Wow! Check out all of the cute Counting Songs. I am so thrilled to have found her website. My own child, Matthew, and I have been having so much fun singing and laughing and loving our music time together thanks to Rachel.
Some of Matthew's favorite songs are: Ugga Bugga Boo!, Ten Fat Turkeys and I Know an Old Lady Who Swallowed A Pie, Friendly Words and Three Blue Pigeons.

What Is It Like to Raise A Child With A Disability?
A wonderfully descriptive poem titled Welcome to Holland written by Emily Perl Kingsley to touch parents, family members as well as someone who doesn't have any idea what it is like.

Samuel's Site
Meet baby Samuel. He was born on April 3, 2009 and he has ACC. His parents created a very beautiful blog site full of positive posts and lots of adorable pictures.

PB&J Time
Meet...Brett, Jackson & Peyton...TRIPLETS! They are adorable, little 1 year olds and you can see and read all about them. One of the triplets, Brett, was diagnosed with p-ACC and infantile spasms.

Nicolas' Agenesis of the Corpus Callosum (ACC) Success Story
Read about 5 year old Nicolas who has ACC and is developing on a typical developmental level and progressing very well.

Meet Jayna
Jayna is a 6 year old girl who was recently diagnosed in October 2008 with complete ACC. She is high functioning and is making progress on a 'normal' developmental level. Jayna has had a few seizures but she is not on seizure medication at this time.

Our Gift of God-Nathaniel
Meet Nate. He's 4 years old and he was born with ACC and colpocephaly.

Meet Jake
Jake is 5 years old and he has ACC & Angelman Syndrome and a fantastic happy smile! :)

Jake at the Angelman Syndrome Foundation Walk-a-Thon on May 16, 2009

brayden and mommy
Meet two year old Brayden. Learn all about him and his journey with ACC and other medical conditions from his mommy's perspective. She has written a very beautiful, touching and heartfelt blog.

My Exceptional Child
Meet 16 year old Matt with ACC. His mom is a teacher and she created a wonderful page absolutely filled with excellent information.

God is Gracious - Iain
Meet brand new, Iain, who was born with ACC.

Nora's Site
Meet 3 year old Nora. Nora has ACC, Arachnoid Cysts and Infantile Spasms also called West Syndrome.

Isabella's Page
Visit 4 year old Isabella. She has Agenesis of the Corpus Callosum, Agenesis of Septum Pellucidum, a chromosome deletion at 1q(44) and a Ventricular Septal Defect-VSD (small hole in her heart).

HAPPINESS IS...

MEAGAN
Meet Meagan...a beautiful little girl who has agenesis of the corpus callosum.

Kyle's Site
Kyle is an adult with ACC who created a fantastic ACC web page including slide photos of children with ACC and a location map. If you would like to learn more about Kyle you can read entries on Kyle's personal ACC Blog

Ingunn's Site
Meet Ingunn, an adult from Norway who has C-ACC. Her web site is written in Norwegian but she also speaks English.

Beyond My Wheelchair
Meet Joseph Bishop, a young man in Colorado with agenesis of the corpus callosum who discovered his gift for painting and opened up his world of self-expression. (Please be advised that some of his paintings are of the female body)

Me and My ACC
Visit Lynnea's ACC Knowledge and Awareness page. She is a 23 year old lovely lady who was diagnosed with ACC when she was 20 years old. Check out her ACC Awareness Blog and also her ACC Success Stories. If you have ACC (or a corpus callosum disorder) or if you are the parent or family member of a child with ACC (or a corpus callosum disorder) and you are interested in sharing your own story on Lynnea's ACC Blog or an ACC success story please E-Mail her.
Get to know her a little more by reading Lynnea's personal story of life with ACC.

Please read and sign the: Petition to Help Generate Media Attention for ACC

Jailynn's Journey with ACC
Jailynn is 2 1/2 years old and she has complete ACC, Epilepsy and cortical dysplasia of the right side of her brain.

Amelia's Page
Meet 9 year old Amelia. She has partial agenesis of the corpus callosum, an unbalanced chromosome translocation of 2p and 14q, Periventricular Leukomalacia (PVL) and a few other diagnoses that are listed on her web site.

Living with Special Needs
A positive and encouraging article written by Lindsey Hopkins about her younger brother, Tyler. Tyler has ACC. The story was published in the May, 2006 issue of her high school newspaper, The Panoptic.

Pietro's Page
Visit Pietro who is from Italy. Pietro has ACC. His web site is written in Italian.
Visita Pietro. Vive in Italia. Pietro ha agenesia corpo calloso. Il suo sito web è scritto in italiano.
Pietro's Mom created an Italian ACC Forum for support.
La mamma di Pietro ha creato un Forum Italiano ACC per il sostegno.

Chance's Vision
Meet Chance. He was born with agenesis of the corpus callosum, optic nerve hypoplasia and several other conditions. A few of those medical conditions are: periventricular nodular heterotopia and panhypopituitarism. Chance has been accepted for stem cell treatments in Thailand and the family is hoping to raise the money to give Chance the opportunity to have stem cell treatments.

Kearstin's Page
Visit 6 year old Kearstin who has ACC and read her journals. I have had the pleasure of corresponding with Kearstin's mom and she is a very warm, caring person.

Gabe's Page
Meet 5 year old Gabe who was adopted from Korea. Gabe has arachnoid cysts and dysgenesis of the corpus callosum and he functions on a typical developmental level.

Cody's Page
Visit 22 year old Cody with ACC and read his story.

Agenesia de Cuerpo Calloso (ACC)
Esta pagina se escribe en el espanol. (This page is written in Spanish)
Esta pagina proporciona informacion acerca de ACC e incluye varios cuentos acerca de ni?os que tienen ACC.
(This page provides information about ACC and includes several stories about children who have ACC)

Payton's Page
Visit 3 year old Payton. Payton has Oral Facial Digital Syndrome Type 1 and ACC.

Emmelia's Story
Written by a good friend of mine who has a very sweet little girl with ACC and Opitz G Syndrome.

The Many Faces of Ben
A very touching and informative story about Ben, a 21 year old young man who has ACC and Opitz G/BBB Syndrome. More information about Opitz can be found at Opitz G/BBB Family Network. The website was written by Ben's mom, Jan.

Azaria's Page
Visit 5 year old Azaria. She has ACC and Aicardi Syndrome. She has another web page on the Aicardi Syndrome site that can be viewed by clicking on Azaria.

Victoria's Page
Visit Victoria's Memorial Page. She had ACC and Aicardi Syndrome. Meet her whole family.

The ACC Square
Visit 4 year old Maki in Japan, a little girl with ACC and Cerebral Palsy. This site is written in English and Japanese.

The Potter Family Home Page
Visit 3 year old Elijah with ACC, Hydrocephalus and Sotos Syndrome. See his baby pictures
and family too. More information about Sotos Syndrome is available through the Sotos Syndrome Support Association.

Andy's (Hi)story
Visit Andy, a little boy in Germany with ACC and MASA Syndrome. See Andy's Main Web Page

Raquel's Page
Visit 8 year old Raquel who has ACC. This page was created by her aunt. Her family speaks Spanish.

Hunter Gale's Home Page
Visit 8 year old Hunter who has ACC.

Alex's Story
Visit Alex who is 6 years old in Australia. Alex has partial ACC also known as dysgenesis of the corpus callosum, Mosaic Trisomy 18 also called Edward's Syndrome and Shapiro's Syndrome also called Spontaneous Recurrent Hypothermia.

The Greer Family Home Page
Visit 3 year old Julie in Virginia who has partial ACC also known as dysgenesis of the corpus callosum and a balanced translocation of her Xp; 3q chromosomes.

If you have a web page about your child with ACC, or a web site pertaining to ACC and would like to include it here please E-Mail me and let me know. If you have any questions please feel free to ask.

I am Matthew's mommy. He is 15 years old and was born with ACC. He is affected with many challenges and they are unique to him. Here is Matthew's Story as posted in The Family Village.

I was very much alone with this diagnosis in the beginning and it wasn't until almost 4 years later that I met another mom who happened to live just a few miles from my home who has a daughter with ACC. It has been such a blessing to find support and have contact with someone who understands my feelings, my thoughts and the emotions that can go along with parenting a child with this unique and rare disability. Just a few months ago we found out that yet another mom lives right in our area with a daughter who has ACC as well. We are very fortunate to have each other.

In April of 2009 I began a Agenesis of the Corpus Callosum Blog. I wanted to create a site that could offer positive information, teaching tools, a variety of information and a place where other people could post comments and give their own valuable and insightful information. I invite you to have a look and please feel free to post your comments on any entries that inspire you to do so. What you offer and share has the potential to help someone else. I look forward to hearing from you.